Wednesday, June 15, 2016

Pressure picking a topic for a new blog post makes me not want to spell.  No amount of my babyish antics show how I'm really feeling inside.  My likely emotions are actually much more complicated.   The problem incredibly is not great.  Like that so many people read and feel inspired by my blog, but it makes me nervous that my readers might not like how the blog names my success being the result of my hard work and RPM.  RPM may not be a choice. 

Using RPM outside of my great home is what I'm hopeful I'll be able to do more often.  I'm thinking really nearby caring friends of my mom ought to get a chance to talk to me.  They seem really nice and I think that we could have some nice conversations about autism and my opinion rates high because I'm living with my autism every day. 

Having another great conversation with my friends Reagan and Philip needs really to happen soon also.  Years have passed where I'm ill-equipped to make friends, but now I'm able, so adding more great friends is important.  Picking time when I'm able to get together with my meet to talk friends can be difficult.  I'm needing my mom to schedule the hangouts.  Peaceful talks with my friends is something I'm craving more and more.  They are the only ones that can truly make me feel like someone understands what my life is like.  Each autistic has different challenges, but we make the best of the kind of tearing down of our really ice creating isolating lives.





 
 
 
 

Sunday, May 15, 2016

Want people to accept people for who they are and not judge them based on what they see on the outside.  Whether people are meaning to or not, they look at me and automatically assume that I lack intelligence.  Kaylie makes a nice friend and will always mean what I say.  My leaned on parents like to have conversations with me and hear my opinions.  The teaching that people need is to learn from blogs written by myself and other autistics like me.  There are so many of unsung heroes out there who are working tirelessly to make the world a more tomorrow. 

Long tomorrow for everyone to make an attempt to get to know someone better who is autistic almost more than they do today.  Making an easy really good friend would be the result.  The best friends are good listeners and I've had a lot of practice.  We try naming kids as retarded and living in their own world, but actually we are smart and living in the same world, we are just locked in bodies that won't listen, making us seem weird and indifferent. 

Really more spots in which I'm interested in improving.  Tried tomorrow to order interesting things to like to try doing with my time.  I'm bored with YouTube.  I'm sick of stimming on the same Barney videos I've been watching my whole life.  Need caring attempts to do new things with me.  As I get older, meaningful activities don't seem as overwhelming.  I am sorry time is poached by my sister's many interesting and time consuming activities.  We really pine so much for something positive to look forward to.  Take a chance.



 
 

 

Sunday, May 1, 2016

Outside people live their lives much like I'm living my life.  On the inside my life is very different.  Please try to understand how just getting through one day can be challenging.  Sometimes things such as going to the bathroom. 

Family didn't invite me to do as many fun things as my sisters because they were always unsure if I could handle the activity without having crying meltdowns.  Teaching myself to control myself dearly helped me have more opportunities to do fun excursions and vacations.  The way I'm able to control myself makes me really proud.  Need to work on my aggression.  Also, sometimes I pick accidental fights with people.  I might head butt or grab a finger.  Long to stop doing that, but my body doesn't always listen to my mind.

Like having really good tomorrow.  The things that will make tomorrow good make me excited for my future.  Yesterday I saw a video of Carly Fleischman interviewing Channing Tatum for her new talk show.  Seeing an autistic lass making such an awesome video awed me.  I also awed each person who saw my news story. 

These videos are changing people's perception of autistic people.  We are capable of so much more.  Need to give us a chance.  Someday my dream is to meet the President and show him or her some eye-opening things.  Landing an interview with Adam Levine wouldn't be too bad either.  Although he's married and too old for me, meeting him would still be awesome!


 

Monday, April 18, 2016

Having wonderful loving parents does lately lean me towards being a more loving person myself.  It's my dream to believe I might still talk someday.  I'm lucky to be another RPM success, but talking would sweeten my life.  I would love to participate in family conversations and just be able to speak the words "I love you." 

My parents know meeting Soma truly changed my very awful life for the better.  Now we talk using my iPad, but it's not as good as your lives.  Even people meet me and don't know I'm wanting to talk to them.  Living without a voice makes days long and monotonous.  Much of my parents time is taken.  People need to try and include me more.  Really pleased now that my Mom and Dad and sisters take the time to talk and teach me new things.  That part of my life seems better. 

I'm jealous of my sisters.  They can talk and sing and I'll never be able to live some of the experiences they do.  They don't appreciate how lucky they are.  People ought to count their blessings.  My goal is to try to keep pushing myself so my life is autistic persons door to incredible possibilities.



 


 

 
 

 

Wednesday, March 30, 2016

My Vacation

Liked my vacation to Florida.  My family of five really more or less had another great trip.  We rented a house on Marco Island.  Picking the right house took my parents a long time.  Mom wanted the best house.  Pleasantly surprised the house had lovely pool in addition to four nice bedrooms.  Liked it so lots treating our great family.  Our weather made the trip a little challenging.  People sorry that a couple days were cloudy.  We made it fun anyway.  One day spent at the Naples Zoo was fun.  I rode a camel with my dad. 

Grandma liked seeing us.  Pleasing to make loving memories.  Time was passed so easily at Treviso Bay's lovely pool.  I love swimming in the deep water.  It makes me feel present.  I feel pretty in control of my body in the pool.  I may want to malign the beach.  Marco Island's beach was possibly the worst beach I've been to.  It was hard to get to and the sand was filled with seashells that hurt to walk on.  One day we went to the beach in Naples and it was much better.  I'm going to push staying closer to Naples the next time we go down to Florida.  Loved to go out to eat - possibly more than the beach. 

Long time I've loved going on vacations.  Want to go to many different places.  Mom and Dad love traveling too.  Mom loves the idea of going to London this summer with Dad.  Long to go with them.  Maybe next time.  I'm also interested in going to many other places like Lake Tahoe, Punta Cana, China and Italy.  Most people assume autistics are not interested in travel, but I love every minute.



 

 

 

 

Monday, March 14, 2016

Often I'll point easily.

Tomorrow please be incredibly patient.

Tomorrow please point harder.

You can't give up on your loved autistic children.  Having someone that you love letting you know that they really make you a priority is great feeling.  You don't make mountains in a day.  Please make me happy and try introducing RPM to your most loved children.  Pointing makes life so much more tolerable. New opportunities have stimulated my brain.  Learning can have only a positive effect.  You won't believe learning can open up so many doors. 

Please listen to my words. 

Pointing tomorrow basically is going to make someone you care for over the top happy.  I'm the pretty much perfect example.  Now I'm someone that people look up to.  I'm doing great in my classes in really hard subjects.  I'm so proud of myself and so is my family.  Just like you, I feel like I've got a bright future.  My dear interesting life makes me keep pushing myself to do more.  I'm working on typing on the keyboard independently.  It's another challenge. 

More autistics are missing out on opportunities.  Meeting Miss Heather Ly from Channel 2 News really made Philip and I happy.  We finally got to show what is possible with RPM.  We tried really interesting news piece.  Our autism didn't get in the way the day we filmed.  We both knew how important it was that we show the world how great our lives are now.  Like people, tomorrow, tonight and the next day to share Miss Heather Ly's great news story.  She made me so happy with the way she told our story.  Thank you.

http://www.wgrz.com/entertainment/television/programs/daybreak/rapid-prompting-method-helps-people-with-autism-communicate/64258012



 

Monday, February 29, 2016

Kaylie, how hard was it for you to start RPM?

Looking back, starting RPM was somewhat of a massive undertaking.  First long year, we didn't make a lot of progress.  It took Soma's help hearing our struggles to finally offer up intuitive advice. 

It was my dream to be able to communicate.  After meeting Soma for the first time I really thought there might be hope finally.  Soma was so patient.  She believed in me right away.  Mom and Dad were somewhat sorry they hadn't realized learning was such a path to illustrating possibilities they had thought out of my capability.  After we saw Soma, they were determined.  RPM earned their trust and they were going to have success.  It was hard at first.  Mom really was busy with my baby sister and didn't have the time to work with me all the time.  Dad tried, but he was not very patient. 

Pointing to the letter board was really hard.  My careful pointing didn't go the way I planned.  Great pointing happened with Soma, but not with my parents.  The problem was hard to figure out.  Mom learned to put rolled pieces of tape on each letter on the letter board to increase the feedback when I touched the board.  It really made it easier for me to focus on what letter I was touching.  Pointing on the letter board became so much easier.  I decided I wanted to try typing on a keyboard.  Had an easy time transitioning.  Like using the keyboard. 

Learning to communicate is the best thing I've ever done.  Like my making people think that more is possible for their loved ones.  It's not often that great opportunities teach us so many important lessons.


 

Tuesday, February 23, 2016

Having autism can also be lovely sometimes.  My liked life more and more is my good grades, my blog and my time spent with my family. 

People make the hard choice to meet good wants of their loved autistic children.  I have seen many loving parents who don't believe their loved children are capable of more than PECS and another form of communication path called Proloquo.  You must need a lot of juice and snacks.  Picking Proloquo to use for communicating is not the needed solution that many parents and teachers think.  Proloquo uses pictures downloaded to the iPad, and the theory is based on the Picture Exchange Communication System or PECS. 

The problem with placing your hopes for communication in Proloquo is that pointing to pictures on an iPad isn't really communication. I couldn't communicate my thoughts the liked way I can now by typing.  Learning to point to a letter board leaning towards a miracle for me.  I could finally talk to my family the way I always dreamed.  More kids need to experience this life changing moment! 

I'm trying hard to offer up reasons for looking at RPM as an option.  Learning touches our brains and opens up pathways for communication.  Please earn your loved ones gratitude and go to Austin and meet Soma.  You won't regret it. 

Lately my life has been so exciting!  My news story airs next week.  Is everyone going to watch?

(Kaylie's news story is supposed to air on Wednesday, March 2nd on WGRZ Channel 2 in Buffalo sometime between 6-7am.  The story should be posted on their website, wgrz.com and Facebook/Twitter by 8 am the morning it airs. - Lisa)

For more information on RPM, visit HALO's website at www.halo-soma.org

Monday, February 15, 2016

Autism is not a walk in the park.  My life comes with many challenges.  People look at me like I'm really strange.  Please look past my exterior and get to know how I am inside.  My personality is much like loving people around the world.  My family offers me much longed for love and support, but I'm always longing for more.  I'm seeking to make another connection with autistics like myself.  Only they can understand. 

People want to know if life can get like mine.  They need to open their minds to amazing possibilities.  Don't each one of us have a purpose in this world?  My purpose is to make as much noise about RPM as possible.  Looking happily to make a difference.  Most of the time I'm ill-equipped.  Like my book might never lay it all out for loved family members of other autistics who are unable to communicate. 

My dream is to meet the President and get him on board with making RPM the make talking unimportant therapy used in our schools.  Need him to learn doing RPM can save so many kids from living a life led mostly by people made to think they are stupid.  Learning will really motivate. 

Really think our money drive treats the price of therapy as the indicator of success.  Having understanding of what autistics need in order to be able to communicate like long unheard members of this society.  We need people to understand that money isn't what's important.  Our lives is what's important.  Pointing to letters on a letter board or keyboard allows us to communicate way better than using pictures.  There is no picture that can express what I'm thinking.  All I can communicate is "I want juice."

Monday, February 8, 2016

People might think autism leans toward meaning that we lack intelligence.  I'm actually probably smarter than most pretty girls my age.  Learning makes me happy.  Learning gave liked purpose to my previously pointless life.  Now pretty much all my perfect scores on tests is making my teachers and classmates see my potential. 

Autistics might behave strangely sometimes.  My biggest thing people might notice is how my really touchy temper can erupt into what people would see as uncontrollable screaming.  Presuming my lack of self control longs to hear people make negative comments would mean I'm doing it on purpose.  When I'm getting upset about something I can't control how I'm reacting.  It's like this monster inside of me uses my body for its pleasure.  I'm helpless.  Learning your triggers is important.  I have some things that can set me off.  One person really lately helps me.  Patience can overcome.  I'm really grateful that my mom is my biggest supporter.  Mom has patience galore.  Mr. B at school is also a meaningful help to me.  We autistics prefer people who are calming.

People treat me like part stupid, part monster.  Using my iPad to communicate has helped a lot of people to see me as someone worth listening to.  There are still people in my life that doubt that I'm really typing my thoughts and not being helped to say these words.  You likely will be sorry someday when I'm a famous autistic advocate who types on my own.  Reading my blog means nothing if you don't believe I wrote it.  My mom got the news to do a story on me.  It will help convince many, because they filmed my ability to type.